We’re back from the Easter holidays, which in Australia are far longer than elsewhere, thank goodness. To get back into the rhythm of things, we have published two articles about “fake news” and bioethics. One reports that prospective IVF parents in Mississippi discovered to their horror that they were twins separated at birth. This went around the world before some spoilsport blew the whistle on it. The other is an announcement by British billionaire Richard Branson that he is setting up a sperm bank for dyslexics. Branson being Branson, it’s hard to tell whether this is fake news or not, but I suspect that it is.
The problem with BioEdge, some readers tell us, is that everything sounds like fake news. This, of course, is not true; we take great care to check our sources. However, all too often the articles seem to have been composed in some gigantic facility manned by bad news elves.
The civil war in Syria may have moved into a dangerous new stage. President Trump ordered a strike on a government air force base, blaming the regime for dropping sarin, a lethal chemical weapon, on a northern town. He announced his decision in an emotional speech:
"Assad choked out the lives of innocent men, women and children. It was a slow and brutal death for so many. Even beautiful babies were cruelly murdered in this very barbaric attack. No child of god should ever suffer such horror."
As everyone knows, there are no good guys in this appalling war. The attack on Khan Sheikhoun was just more spectacular than the daily slaughter of three here, a dozen there. If you consult the website of the Syrian Observatory for Human Rights or Syria Deeply, the headlines are enough to make anyone weep. One of the most distressing aspects of the conflict is the "weaponisation of healthcare" -- deliberately targeting medical personnel and facilities to terrorise the population. You can read about it below.
Here’s something very odd. Back in 2015 terrifying news came from Brazil about an epidemic of microcephaly – babies born with very small heads and brain damage. It seemed to be associated with the mosquito-borne Zika virus. Neighbouring countries prepared for the spread of Zika with a sense of dread. Lobby groups urged relaxation of abortion restrictions.
But how often in the past six months have we heard about the Zika virus and microenphaly? A graph on Google trends shows that it has dropped off the media’s radar. With good reason – there has been no epidemic of microcephaly. The experts expected 1,000 cases, but there were only about 100.
Nobody knows why this is. There is an association between Zika and microcephaly, but it must be more complicated than scientists first thought. An article in the NEJM this week reports the good and canvases a number of explanations. It may be that for microencephaly to occur, a woman needs to contract both Zika and Dengue fever.
Perhaps there is a lesson here – however bad the news is, DON'T PANIC!! In particular, there is no need to push for changes in abortion legislation before we know all the facts...
A number of the eminences of Silicon Valley are besotted with immortality. Google, PayPal co-founder Peter Thiel, and Facebook’s Mark Zuckerberg are a just a few names amongst the many who want to do away with death, or at least add a few decades, or even a few hundred years, to their lifespans.
Even if this is achievable, is this desirable?
British sci-fi author and futurist Paul Graham Raven has written a blistering demolition of the transhumanist project. (Hat-tip to Wired.) It is basically a philosophy for selfish (and mostly white) rich guys, he suggests.
it turns out that technologies which extend, augment or otherwise improve human life are already here! You may have heard of some of them: clean water; urban sanitation; smokeless cooking facilities; free access to healthcare; a guaranteed minimum income; a good, free education. There are more – and you’d be surprised how many of them have been around in one form or another for decades, even centuries! But they’re unevenly distributed at the moment, so the first agenda item for all transhumanists should be looking for ways to get these technologies to everyone on the planet as soon as possible
But that is unlikely to happen. In their single-minded focus on maximising their own welfare, dedicated transhumanists are deaf to the needs of the society: “You look after yourself, I’ll look after me; what could be fairer than that?” Raven writes caustically. Come to think of it, this critique of personal autonomy could be applied to a number of other areas in bioethics.
One of the star exhibits in the Royal College of Surgeons' Hunterian Museum of anatomy in London is the skeleton of Charles Byrne, an 18th Century Irishman who was about 8 feet tall. However, the museum is to close in May for renovations and there are calls to use the opportunity to remove or bury the remains. Does this make sense?
A celebrity in his day, Byrne died in 1783 of ill health and drink in London. He knew that John Hunter wanted to dissect him after his death, so he directed his friends to sink his body in a lead-lined casket in the English Channel. Alas, Hunter succeeded in stealing the body anyway and it eventually turned up in a display case.
Similar events darken the history of the Australian state of Tasmania. The last full-blood Aboriginal Tasmanian, William Lanne, died in 1869. Although the story is murky, it appears that before his funeral the Surgeon-General of the colony, William Crowther, stole his head for “scientific study” and someone else removed his hands and feet. There is no record of scientific studies. Crowther went on to become premier, and an impressive bronze statue of him was erected in the centre of the city.
The last full-blood Aboriginal woman in Tasmania, Truganini, was terrified that the same thing would happen to her and directed that her body be cremated. Her wishes were ignored and her skeleton ended up in a display in the Hobart Museum. It was finally cremated in 1976.
Nowadays body-snatching would not be tolerated (although the Hunterian Museum still refuses to remove Byrne’s body from display). But the notion that scientific curiosity is its own justification persists. University of Tasmania historian Stefan Petrow points out, that the fate of Lanne and Truganini demonstrate “the hegemony scientific knowledge sought to establish over fundamental human rights such as a decent burial”. Can’t the same thing be said about some aspects of stem cell research?
A State Senator in Hawaii, Breene Harimoto gave an emotional address this week to persuade his colleagues to vote against a bill for legalising physician-assisted suicide for the terminally ill. He said that in 2015 he had been diagnosed with pancreatic cancer, which has a low survival rate and can be quite painful. But he was cured. “It is a miracle that I am still alive,” he said.
His point was that “terminal illness” is almost meaningless. Margaret Dore, a Seattle lawyer who lobbied against the bill, recalls an even more dramatic incident. “A few years ago, I was met at the airport by a man who at age 18 or 19 had been diagnosed with ALS (Lou Gehrig's disease) and given 3 to 5 years to live, at which time he would die by paralysis. His diagnosis had been confirmed by the Mayo Clinic. When he met me at the airport, he was 74 years old. The disease progression had stopped on its own."
If Senator Harimoto or Ms Dore’s friend had the option of assisted suicide, they might stopped fighting their disease and chosen a quick death. They would have chopped decades off their lives. “Terminal illness” is a pillar of assisted suicide legislation – and it just doesn’t make sense.
Parramatta is just 20 minutes west of the BioEdge office. It’s not a city which has made a huge mark on the world, although not long ago an ISIS-inspired teenager shot dead a police employee and ended up dead himself. It has a lot of historic buildings from the colonial era, surrounded by high rise office buildings, drab shops and a huge park.
A few weeks ago the park hosted Tropfest, billed as the world’s largest short film festival. The crowds watched the films on huge screens as they picnicked on the grass. I was amazed that the winner was a 7-minute film about euthanasia, “The Mother Situation”. With excellent acting and snappy dialogue, it is a brilliant black comedy. Three adult children are delighted to hear that their mother wants to be euthanised – but then she changes her mind.
The director, Matt Day, says that it is not an anti-euthanasia film, but I haven’t seen anything which illustrates more vividly the danger of elder abuse. Sure, it’s absurd and a bit unrealistic but it sends a powerful message. Check it out.
We’ve often blamed the pharmaceutical industry for medicalising the normal ups and downs of life. But journalists are not above disease-mongering. I’ve just noticed a promising new ailment to which members of the Fourth Estte themselves are particularly susceptible: post-election stress disorder.
According to columnist in Psychology Today, “Countless Americans are reporting feeling triggered, traumatized, on edge, anxious, sleepless, angry, hopeless, avoidant of connection, alone, and suddenly haunted by past traumas they believed they had buried” because of the Trump election.
As of now, no pharmaceutical company is marketing a drug to cure these anxieties. Instead, therapists are recommending a range of behavioural strategies for dealing with the stress. “I advise my clients and friends affected by the election and its aftermath to reach out, connect, affiliate and show compassion for those similarly affected,” wrote Steven Stosny in the Washington Post.
Some people are indignant that Post-Traumatic Stress Disorder after battle is being compared to discouragement after an election loss. Republican Congressman Brian Mast lost both legs in Iraq because of a roadside bomb. Let him have the last word:
There was a big missed opportunity in naming it ‘Post-Election Stress Disorder,'” he says. “I would have preferred they name it ‘Post-Inauguration Stress Disorder,’ that way they could have called it ‘PISD.’ There’s a big difference between being pissed off about things and what happens on the battlefield.”
Winston Churchill was once voted the “greatest Briton of all time” in a BBC poll, edging out Isambard Kingdom Brunel (who?), Lady Diana, Shakespeare and John Lennon. Now, in addition to his gifts as a statesman and politician, orator and historian (and artist), we have been reminded that he helped to popularise science as well.
As reported in Nature, an historian has discovered an 11-page manuscript which Churchill penned in 1939 but never published, speculating about life on other planets. It turns out that the great man was deeply interested in modern science and followed developments keenly. Gazing at the gathering storm, he wrote pessimistically:
“I, for one, am not so immensely impressed by the success we are making of our civilization here that I am prepared to think we are the only spot in this immense universe which contains living, thinking creatures, or that we are the highest type of mental and physical development which has ever appeared in the vast compass of space and time.”
But despite the reminder that Churchill was a fan of science, it’s also good to remember that he believed that there were moral limits to science. In one of his most famous speeches, he foresaw dark days for the world if Germany were to win the War:
If we can stand up to [Hitler], all Europe may be free and the life of the world may move forward into broad, sunlit uplands. But if we fail, then the whole world ... will sink into the abyss of a new Dark Age made more sinister, and perhaps more protracted, by the lights of perverted science. Let us therefore brace ourselves to our duties, and so bear ourselves that, if the British Empire and its Commonwealth last for a thousand years, men will still say, "This was their finest hour."
Science, so Churchill believed, was fascinating, but not good in itself. It had to be governed by morality, lest it become “perverted”. It’s not a bad reminder for us, three generations on, as we enter an era of genetic engineering.
A child who self-harms must be one of the most agonising experiences a parent can have. But it is relatively common. A study in The Lancet a few years ago found that about 1 in 12 teenagers, mostly girls, engaged in self-harming behaviour, with the most common methods cutting or burning. Most of them stop as adults, but some continue. It is a phenomenon which still seems to baffle the medical profession, despite the abundance of statistics.
In this issue of BioEdge, we report on an interesting response to self-harm, at least for some patients – educate them to minimise the harm, but supply them with razors. Given that harm minimisation is a popular public policy approach in other areas, like drugs, this makes some sense. But I think that most people will regard it as quite confronting. What do you think?