A new prenatal test could reduce the expense of caring for those with Down’s Syndrome, says the UK Royal College of Obstetricians and Gynaecologists (RCOG).
In a recent submission to the National Screening Committee, the RCOG said that a “rigorous economic analysis” is needed to evaluate the benefits of rolling out Non-Invasive Prenatal Testing (NIPT).
If the decision has been made primarily on cost grounds, then a more rigorous economic analysis has to be made that includes the lifetime costs of caring for children and adults with Down’s syndrome (bearing in mind that cfDNA testing as a primary screen test will identify approximately 289 more babies with trisomies). Such an economic analysis may (or may not) suggest that cfDNA testing for all is cost-effective.
The RCOG submission was part of an NSC review into the impact of introducing NIPT.
A clinic for euthanasia for children could open in the Netherlands within the next 12 months, a leading paediatrician has predicted. Dr Eduard Verhagentold the newspaper AD that Dutch doctors are already investigating end-of-life decisions for children between the ages of 1 and 12.
Although Belgium passed a law last year which allowed people under the age of 18 to ask for euthanasia, involuntary euthanasia was already legal in the Netherlands for children under the age of one, and voluntary euthanasia for children over 12, as long as they had unbearable suffering.
It seems that 5 children between 12 and 18 were euthanized in the period 2002 to 2012. One was 12 years old and the other four were aged 16 and 17.
The debate over conscientious objection is continuing, with the editors of two major bioethics journals calling for strict limits on “objection at the bedside”.
In a paper released in Bioethics this week, Julian Savulescu, the editor of the Journal of Medical Ethics, and Udo Schuklenk, the co-editor of Bioethics, argue that doctors have “no right to refuse access to assistance in dying, contraception or abortion”.
Savulescu and Schuklenk believe that disagreements about the provision of healthcare should be carried out in policy forums, and not in a clinical context.
“Individual values ought not to govern delivery of health care at the bedside. Doctors can campaign for policy or legal reform. They can also provide advice with reasons, based on their values. But they have no claim to special moral status that would permit them to deny patients medical care that these patients are entitled to.”
Will you live long enough to be enslaved by super-intelligent artificial intelligence? Oxford philosophy professor Nick Bostrom has often made headlines with predictions that you might.
“Before the prospect of an intelligence explosion, we humans are like small children playing with a bomb,” he writes. “We have little idea when the detonation will occur, though if we hold the device to our ear we can hear a faint ticking sound.”
Another American fertility doctor is in court over allegations that he used his own sperm to treat patients.
Now retired, 77-year-old Dr Donald Cline, who ran a clinic in Indianapolis, appears to have fathered 8 children after secretly donating his own sperm 50 times to his patients in the 1970s and 80s. He told them that it came from medical or dental students or residents and that none of the donations had been used more than three times.
The fraud was detected when a local woman used a genetic testing kit made by the genomics company 23andMe and discovered that she was related to dozens of people who were related to Dr Cline.
The acrimonious fight over frozen embryos between Hollywood celebrities Sofia Vergara and Nick Loeb is due in court again in January in California and could set an important legal precedent.
The Modern Family TV star and the financier created frozen embryos in 2013 when they were living together. They signed an agreement that both had to agree if the embryos were placed in a surrogate mother. However, they split up in 2014. When Loeb proposed the surrogate mother option, Vergara refused. She was content to leave them frozen. “More than a mother, a baby needs a loving relationship of parents that get along, that don’t hate each other,” she said in a TV interview. “I wouldn’t want to bring kids to the world that is already set against them. It would be so selfish.”
A Swedish scientist has begun what are believed to be the first gene-editing experiments on healthy human embryos.
Developmental biologist Fredrick Lanner from the Karolinska Institute is using CRISPR-Cas9 gene-editing technology to identify the function of specific genes in the human genome, and to learn more about the causes of infertility and miscarriages.
Lanner, who also hopes to gain insight into the use of embryonic stem cells to fight disease, says that his experiments are both necessary and morally permissible; he intends to experiment on healthy embryos until they reach 14 days of development. “I think it's wise to be allowed to do fundamental research so we can gain more information about this technology and potentially use it in the future”.
In 2013 the influential German magazine Der Spiegel published an expose about clinical trials conducted by Western drug companies in East Germany during the Cold War. The magazine reported that at least 50,000 people had been test subjects for around 900 studies done by manufacturers that included leading companies from Switzerland, the United States, and West Germany. Fifty hospitals were sites of the research, including the prestigious Charite in East Berlin. The principle motivation for the East Germans was money: they desperately needed hard currency for their failing medical system. For their part the companies appreciated the far greater efficiency of recruitment in the East, and paid the East Germans up to 800,000 West German marks per study.
Most of the victims of the sterilization campaign were poor indigenous women/ BBC
"A nurse put me on a stretcher and tied my hands and feet," said Sabina Huillca. "I asked them to bring me my little baby girl but instead they anesthetized me. When I woke up, the doctor was stitching my stomach. I started screaming, I knew I had been sterilized."
In Peru, during the presidency of Alberto Fujimori, 272,000 women and 22,004 men were sterilized between 1996 and 2000 as part of the National Reproductive Health and Family Planning Program. Most of the men and women were indigenous, poor, and living in rural areas. The program's alleged aim was to eradicate poverty through lower birth rates, but evidence has emerged over the years that it was coercive and blatantly violated reproductive rights.