Dolce & Gabbana's latest show celebrates maternity
The marquee bioethics story of the week comes from the catwalks of Milan. In an interview in the Italian magazine Panorama, gay luxury fashion designers Stefano Gabbana and Domenico Dolce attacked same-sex marriage, IVF and surrogacy. Twitter and Instagram instantly became incandescent with indignation over a few score of words by the billionaire designers.
Dolce and Gabbana lived as a couple for 20 years, but split up amicably in 2005, although they remain prodigiously successful business partners. When asked if they would like to be fathers, Dolce replied, “I’m gay, I cannot have children.” He added that he feels that “you are born to a mother and a father — or at least that’s how it should be. I call them children of chemistry, synthetic children. Rented uterus, semen chosen from a catalogue.”
Is it ethical to Google your patients? A recent article in the Journal of General Internal Medicine examines this question, with Penn State College of Medicine researchers contending that professional medical societies must update or amend their Internet guidelines to address the ethics behind it.
“Many physicians would agree that seeking information about their patients via Google seems to be an invasion of privacy, violating trust between patients and their healthcare providers,” explain the researchers. “However, it may be viewed as ethically valid, and even warranted under certain circumstances.”
The article examines two scenarios in which ‘googling’ a patient is taken to be ethically permissible. One involves contacting patient whose genetic results are reassessed after many years and revealed to contain a deleterious mutation. The other involves a patient whose genetic counsellor suspects is lying about her family history of cancer.
US-based genetic testing company 23andMe intends to use its customers’ data for ground-breaking drug research and development programs.
The company has in the past collaborated with medical researchers and pharmaceutical companies by licensing access to genetic information contained in its database. But last week it revealed it plans to set up its own pharmaceutical wing to identify new drug targets for both common and rare diseases.
Researchers believe mutations and other genetic information in the 23andMe database will reveal potential drug targets for a range of diseases. Healthy carriers of mutated genes may offer insights into why some people do not develop disease.
The announcement comes with the appointment of Richard Scheller, former Genentech vice president of research and early development, as chief scientific officer and who will lead a newly created therapeutic subdivision. Professor Scheller said that ‘human genetics has a very important role to play…
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The proposed bill, put forward by the ruling Civic Platform party, would allow married and cohabiting couples access to the procedure after 12 months of trying to conceive. The age limit is likely to be capped at 35 for women.
The bill would also ban sales and destruction of human embryos, cloning of human embryos and manipulation of human DNA.
Polish Prime Minister Ewa Kopacz said she was concerned about inadequate legal structures regulating IVF. “The current lack of a legal framework for IVF is morally ambiguous and, from a medical standpoint, potentially dangerous”.
The proposed legislation comes in the wake of a Polish hospital IVF mix-up that led to one woman giving birth to the child of another female patient.
At least 50 patients are euthanased each year for purely psychiatric reasons, says the leading figure in Belgian euthanasia, Dr Wim Distelmans. In an interview in the Belgian magazine Humo, he says:
Manic-depressive patients, in their manic moments, are capable of doing the most improbable things: plundering their bank accounts, staying for weeks in five-star hotels, buying several cars in a single day. At that stage they are not mentally competent, obviously. But in moments of depression, exhausted … they are certainly competent. Then they can say, for example: "I have lived through crazy highs and lows for 30 years; I've tried everything to break that infernal cycle, including psychiatric hospitals, but now I'm back on the baseline, and I know I have a few weeks left before I'm sinking into the depths or rising to heights.”
The New York Times is edging to a cautious endorsement of euthanasia and assisted suicide. In an editorial this week, it highlighted the case of Diana Rehm, a well-known personality from National Public Radio, whose husband, who suffered from Parkinson’s disease, chose to starve himself to death after reaching the end of his tether.
Maryland, where he died, is a state which does not allow assisted suicide. “For him to go out that way, not being able to do anything for himself, was an insufferable indignity,” Ms Rehm said in an interview.
Oddly, the editorial did not point readers towards action. It echoes the arguments of Compassion & Choices, the leading American assisted suicide lobby group, and averts to both the Catholic Church’s opposition and the problematic example of the late Jack Kevorkian, who killed at least 130 of his patients.
A dispatch from the Let’s-Hope-This-Doesn’t-Happen-Too-Often Department.Australian health authorities are investigating an Italian man who practiced as a gynaecologist and IVF expert in Melbourne for more than a decade. He had offices in posh suburbs and advertised his better-than-average pregnancy rates.
Unfortunately Raffaele Di Paolo was only a Mr and not a Dr who appears to have attracted patients by adding a dash of homeopathic medicine to his treatment. He claimed to be a member of the “European Society Human Reproduction Endocrinology” which sounds like, but is not, the European Society of Human Reproduction and Embryology.
One of his duped clients told the Sydney Morning Herald that Di Paolo told her that he had turned to homeopathy because conventional fertility clinics were "money hungry IVF factories that herd women like cattle". Over two years she spent A$30,000 on his services, some of which were extremely bizarre.…
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Organ trafficking is often though to be a phenomenon of the developing world. A number of recent UK cases have indicated otherwise. A recent report by the UK’s National Crime Agency stated that there were two cases of organ trafficking in the country in 2014 – one involving a woman in her 30s, and another involving a boy as young as 12. Very little is known about the cases, other than that the organ traffickers were stopped before they could operate on the individuals. A spokesman for the Human Tissue Authority (HTA) stated that authorities had alerted them to the incidents.
According to the World Health Organisation (WHO), as many as 7,000 kidneys are illegally obtained by gangs each year around the world.
France’s parliament is set to debate a ‘deep sleep’ bill which, if passed, will allow terminally ill patients to be put into an irreversible comatose state and have life sustaining treatment withdrawn.
The bill, proposed by centre-right politician Jean Leonetti, aims to give patients with ‘hours or days to live’ the right to be placed under general anesthetic until the moment they die. “The patient has to be at the end of their life and suffering despite the treatment given,” Leonetti said. “When these elements are present, I [the doctor] am obliged to start sedation that is deep and continues until death.”
The sedation provided would be titrated such that there would be no chance of the patient regaining consciousness. Life sustaining treatment – such as artificial nutrition and hydration – may also be withdrawn.