Informed Consent


A cool, rational analysis of egg freezing

Xavier Symons | 17 October 2014 | Comments
tags: egg freezing, informed consent
With egg freezing rapidly becoming a fashionable and convenient reproductive option, the Harvard Law review has published a circumspect article on the dangers of this form of fertility preservation.

Bioethicists defend ‘manipulative’ Facebook study

Xavier Symons | 01 August 2014 | Comments
tags: Facebook, informed consent, research ethics
After the flurry of criticism for the now infamous Facebook ‘social contagion’ study, bioethicists are defending its authors.

‘Informed consent has become a fetish’ – American bioethicist

Xavier Symons | 18 July 2014 | Comments
tags: informed consent
In a recent Hastings Centre Report article, bioethicist Barbara A. Koenig argues stridently against traditional informed consent models for genetic testing. Koenig believes that the ‘full disclosure’ model of informed consent is impracticable

Dutch doctor challenges informed consent regulations

Xavier Symons | 12 July 2014 | Comments
tags: informed consent, sterilization
A new article in the Journal of Medical Ethics suggests that medical authorities lessen informed consent requirements for perinatal sterilisation.

What are the issues in post-mortem sperm retrieval?

Michael Cook | 05 July 2014 | Comments
tags: informed consent, sperm retrieval
Is it ethical to remove sperm from a dead body without consent?

Do prisoners have a right to participate in clinical trials?

Michael Cook | 28 June 2014 | Comments
tags: clinical trials, informed consent, prisoners
Prisoners are being unfairly excluded from taking part in potentially beneficial clinical research, argue researchers in the JME.

Can patients enjoy a life of disability?

Michael Cook | 27 June 2014 | Comments
tags: brain injuries, informed consent, retrospective consent
What a fit and healthy person regards as “acceptable” might not match what a disabled person feels about life.

Inducing death to give life – without patient consent

Xavier Symons | 14 June 2014 | Comments
tags: clinical research, informed consent
A new emergency procedure being trialled in a US hospital has bioethicists feeling nervous.

Austrian historians studying another informed consent debacle from the 50s

Michael Cook | 10 May 2014 | Comments
tags: Austria, informed consent
Another informed consent scandal from the 1950s: researchers deliberately infected hospitalised children with malaria.

Rethinking informed consent

Xavier Symons | 09 March 2014 | Comments
tags: Belmont Report, informed consent
If a trial has no or only minor effects on important patient interests, do we need it?

The dilemma of whether to release genetic information

Xavier Symons | 01 March 2014 | Comments
tags: genetic privacy, informed consent
When should you tell someone that he has Alzheimers?

US scientists were “accomplices after the fact” in Japanese doctors’ war crimes

Michael Cook | 23 February 2014 | Comments
tags: informed consent, war crimes, World War II
How US scientists led a campaign to grant immunity from prosecution for Japanese doctors guilty of horrendous crimes.

Have we gone too far with informed consent?

Michael Cook | 23 February 2014 | Comments
tags: informed consent
Under the right conditions, full informed consent is not ethically required for some types of health research, according to leading bioethics experts.

More questions about Belgian euthanasia

Michael Cook | 31 January 2014 | Comments
tags: Belgium, euthanasia, informed consent, terminal sedation
A puzzling study from Belgium suggests that in nearly 80% of terminal sedations in Flanders, there was no explicit consent.

Calls for Virginia to compensate sterilization victims

Xavier Symons | 14 December 2013 | Comments
tags: eugenics, informed consent, sterilization
Pressure is mounting on legislators in Virginia to compensate victims of its forced sterilization policy in the early years of the last century.

New details surface in UK forced delivery case

Xavier Symons | 14 December 2013 | Comments
tags: informed consent
A number of important facts have come to light in the case of Alessandra Pacchieri, an Italian woman subject to a forced caesarean when visiting the UK, followed by the seizure of her child by child protection workers.

The tragedy of the lobotomized GIs

Michael Cook | 14 December 2013 | Comments
tags: informed consent, lobotomy, research ethics
Sometimes it’s good to remind yourself that bioethicists are good guys to have around if your doctor is thinking about using you as a guinea pig for a novel medical treatment. For instance, they would have been useful after World War II when doctors in the US Veterans Administration lobotomized at least 1,900 military men (and a few women).

Visiting Italian woman forced to have C-section in UK

Xavier Symons | 07 December 2013 | Comments
tags: informed consent, UK
Shocking details surfaced this week of an Italian woman who had her baby forcibly delivered whilst visiting the UK

Another unethical study – this time in NY’s Bowery

Michael Cook | 19 October 2013 | Comments
tags: clinical trials, informed consent
In the 1950s an oncologist recruited homeless men for a study of prostate cancer.

Autistic boy “debarked” to prevent screaming

Xavier Symons | 05 October 2013 | Comments
tags: disability, informed consent
Controversy has arisen around a procedure performed on an American autistic boy to stop him screaming. At the request of his parents Kade Hanegraaf had his vocal cords separated so as to greatly reduce his ability to scream.

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