The bitter debate over President Obama’s
healthcare plan can be baffling. With a finite supply of money, surely the cost
of treatment has to be taken into account, one side argues. The other side
contends passionately that lives cannot be measured with dollars.
Most of the time, the battle rages over
grey areas. However, the controversial freelance bioethicist Jacob M. Appel,
writing in the Huffington Post, helpfully discusses a case which makes the
issue black and white. This involves a dispute over a New Jersey man, Ruben
Betancourt. Mr Betancourt was in a vegetative state, after his brain had been
starved of oxygen. His relatives wanted him kept alive; the Catholic hospital
wanted to withdraw his respirator and other care because they were merely
prolonging his death.
Mr Betancourt passed away before New
Jersey's Superior Court was able to issue an order. However, it may soon
clarify whether hospitals can discontinue care in such cases. Mr Appel believes
they should.
He says: “[the] court [should] decide that physicians and taxpayers only have a
duty to provide unlimited care to patients who have a meaningful chance of
returning to consciousness. Let us make no mistake about what this would mean:
It would mean declaring that the lives of PVS patients are worth less than
those of others. Rather than shying away from this outcome, progressive
bioethicists should have the courage to acknowledge and to embrace this
proposition.”
There
you have it: an example of “healthcare rationing” in its starkest form. If care
of the estimated 25,000 PVS patients in the US were withdrawn all at once, the
system would save US$6 billion a year, according to futility law expert Thaddeus Mason Pope.
In response, on Bioethics
Forum, at the Hastings Center Report, L.
Syd M Johnson says it’s not that simple – even the Betancourt case. Johnson
points out that Betancourt was not actively dying, that some PVS patients
recover; that some PVS patients are misdiagnosed; and that other patients are
unlikely to benefit from the savings. Besides, Johnson continues, “There
are substantial social costs to declaring an entire class of patients
‘worthless’.” ~ Bioethics
Forum, July 2; Huffington
Post, June 23
A leading Scottish health campaigner has
implored the Scottish Government to urgently address the problem of
malnutrition of the elderly and vulnerable in National Health Service hospitals
in Scotland.
Dr Jean Turner, executive director of Scotland
Patients Association, warned that hundreds of patients, especially the elderly,
are undernourished and deteriorating in hospital beds because they are not
receiving help with feeding. She says that it is “a form of euthanasia”.
She says nursing staff rarely express their
concerns about patient welfare for fear of repercussions from senior
management.
A recent report estimated 50,000 patients die
annually in NHS hospitals in an undernourished state, which may have hastened
their deaths. The warning by the SPA follows a Scottish Public Services
Ombudsman report that severely criticised a Lanarkshire hospital’s care of a
66-year old patient.
The woman’s death was attributed to kidney
failure after a 14-week stay in Wishaw General Hospital, and her family says
poor standards of care, especially in nutrition, hastened her end. One family
member told the Sunday Herald: “Staff would tell me, ‘It takes an hour to feed
your mother and we don’t have an hour’.” ~ Herald
Scotland, Jul 7
The archeologists of a 2,000-year-old Roman
villa in the Thames Valley are puzzled by the discovery of a mass burial of 97
new-born infants. Forensic examination of the skeletons found at the Yewden
villa in Buckinghamshire suggests the inhabitants must have been systematically
killing the children. Archaeologist Jill Evers believes that the villa may have
been a brothel. She says that without contraception or abortion, the Romans
would have had to kill newborns.
While shocking to modern sensibilities, researchers
told the BBC that infants were not considered to be human beings in the fullest
sense until they were about two years old. Children younger than this were
seldom buried in cemeteries, but in the grounds of domestic sites.
The bones were actually unearthed and
catalogued in 1921 and stored in cigarette and cartridge boxes in the
Buckinghamshire County Museum. However they were lost until recently. Now
archaeologists plan to carry out
DNA tests to establish the sex of the infants and whether they were related. ~ BBC, June
25
Recent media coverage of a blood test for
Down’s syndrome suggests that children with the condition are being depicted as
non-persons. The Daily Mail, Britain’s second-largest newspaper, announced that
“A quick inexpensive blood test for Down's syndrome that could save the lives
of hundreds of unborn babies each year is being developed by scientists”.
However, the main result of the test would to terminate hundreds of unborn
babies with Down’s syndrome.
The lives of unaffected babies could be considered
“saved” only in the sense that they would not be miscarried as a result of
invasive investigations to detect and destroy Down’s syndrome babies.
Despite the publicity given to this
preliminary report of research by Dutch scientists at the annual conference of
the European Society of Human Reproduction and Embryology, a successful test is
still several years away. Professor Stephen Robson, a spokesman for the Royal
College of Obstetrics and Gynaecology, described it as
the “holy grail” of pre-natal testing. ~ Daily
Mail, June 30
Embryos produced using IVF can be screened
for genetic defects before implantation into the womb, a German high court
ruled on Tuesday. Leipzig’s Federal Supreme Court ruled in favour of a Berlin
gynaecologist who carried out pre-implantation genetic diagnosis (PGD) for
three couples and implanted only the healthy embryos. The other embryos, which
possessed hereditary defects, were left to die off.
The doctor, 47, unidentified by the court,
brought the case to court himself in 2006 to clarify the legal situation. He
was acquitted by a Berlin regional court, but the city’s state prosecutor
appealed.
Judge Clemens Basdorf told German news
agency DAPD that IVF embryo screening should be legal "if there is a
danger of grave genetic defects for the desired children of the patients."
~ AP, Jul 7
It’s expensive to treat the dead with
dignity. This seems to be the message from a bizarre story from Lagos, Nigeria’s
largest city. A waste disposal contractor for Lagos University Teaching
Hospital has been arrested after
he was caught looking for a burial spot in the bush for about 70 dead babies.
He claimed that he was employed to bury them in a cemetery but was not given
enough money. A hospital official said that the incident was “embarrassing” and
declared that the hospital was investigating the incident.
According to the BBC, many families are too
distraught or too indigent to care
for dead babies and they abandon them outside hosptitals. It seems to be a case
of gross mismanagment, but police are inquiring whether ritual ceremonies or
organ trafficking was involved. ~ BBC, July 7
Two recent neuroscience articles in
important journals claim to undermine free will and “human exceptionalism”.
In the journal Science
Dutch researchers claim that an overview of the literature shows that conscious
decisions are deeply affected by the “unconscious will”.
"People often act in order to realize
desired outcomes, and they assume that consciousness drives that behavior. But
the field now challenges the idea that there is only a conscious will. Our
actions are very often initiated even though we are unaware of what we are
seeking or why," says Ruud Custers, of Utrecht University.
Custers told Time magazine that our conscious
selves not really in charge, but that this is not necessarily a problem.
"We have to trust that our unconscious sense of what we want and what is
good for us is strong, and will lead us largely in the right direction."
In a similar vein, a study in the Journal of Neuroscience claims that brain
scans can predict behaviour better than the people whose brains were scanned.
Scientists at UCLA were able to predict whether subjects would use suntan
lotion more accurately than the people themselves.
This
could be a major finding for advertisers. While
advertising agencies often use focus groups to test commercials and movie
trailers, in the future they and public health officials perhaps should add
"neural focus groups" to test which messages will be effective while
monitoring the brain activity of their subjects. “We're just at the beginning,” says Matthew
Lieberman, a UCLA professor. ~ Science
Daily, June 23; Time,
July 2
The US is poorly prepared to care for the
growing number of aged with intellectual disabilities, according to a
commentary in the Journal of the American Medical Association. Nowadays these
adults live nearly as long as the general population. “Consequently, the relatively rapid increase in
a new population of aging adults with complex medical and mental
health problems has resulted in inadequate geriatric health care
provision,” say Elizabeth A. Perkins and Julie A. Moran.
The problem is
not new. A 2002 report by the US Surgeon General complained about
problems with health status, access to care and lack of training for doctors. “Nearly a decade later,” say Perkins and Moran, “progress is slow,
and efforts affecting the well-being of older adults are even more marginal.” Stigmas
and stereotypes persist, hampering attempts to treat these people with dignity.
~ JAMA, July 7
An interesting example of politicised science has emerged during
Senate hearings on Elena Kagan's nomination to the Supreme Court.
Documents reveal that she doctored a draft statement on partial-birth
abortion by the American Council of Obstetricians and Gynaecologists
(ACOG) while she was an associate White House counsel for the Clinton
administration in 1996. The documents, released by the Clinton Library,
include a memo,
a draft
ACOG statement on partial-birth abortions, and a set of undated
notes in Kagan’s handwriting.
At the time, the
Clinton Administration opposed any restrictions on partial-birth
abortions which did not include health exceptions. ACOG asked the White
House for advice about how to describe its positions. Its draft
statement said that it “could identify no circumstances under which this
procedure . . . would be the only option to save the life or preserve
the health of the woman.” This clearly undermined Clinton's stand.
Kagan
helpfully rephrased the statement. It then read: "A select panel
convened by ACOG could identify no circumstances under which this
procedure, as defined above, would be the only option to save the life
or preserve the health of the woman. An intact D&X, however, may be
the best or most appropriate procedure in a particular circumstance to
save the life or preserve the health of a woman, and only the doctor, in
consultation with the patient, based upon the woman's particular
circumstances can make this decision."
Unsurprisingly, the
discovery of the documents has enraged the pro-life lobby. But Slate
columnist William Saletan said what concerned him most was that ACOG
consented to Kagan's editorial assistance, and that subsequently her
additions were cited by the Supreme Court to allow partial-birth
abortions to continue. ~ Slate, Jul 3;
National
Review Online, Jun 29; CNSNews, Jun 29
We missed this story when
it broke, but it is too good to pass up. British serial surrogate
Louise Pollard has announced that she is giving birth to the grandchild
of Osama bin Laden.
Omar bin Laden, 29, fourth son of the world’s most wanted
man, hired Louise via a website, and offered her £30,000 for her
services. Omar is the sixth husband of 54-year-old Jane, who took the
name Zaina Mohamad al-Sabah bin Laden after converting to Islam. She is a
grandmother who suffers from MS and has three adult children from
previous relationships.
Ms Pollard, a previously married single
mother with one son of her own, has given birth twice to other people’s
children. She became a surrogate mother for the first time at 21 and may
be the youngest surrogate mother in the UK. She aspires to eclipse
Carol Horlock, who has had 12 babies for other couples and is believed
to be the UK’s most prolific surrogate mother.
A relative of Pollard
told The Sun: "It doesn't matter to her who she's doing it for. All
she's interested in is the money. She is a single mum with her own
three-year-old son." Mr bin Laden says he “hates” his father and that he
has had no contact with him for nearly 10 years. But if anything is
likely to bring Osama bin Laden into the open, surely it is his grandchild-to-be. ~ Daily Mail, May 20, Jun 11; The Sun, Jun 12
Consequences of the Bio-Medical Revolution
May 1, 2010, Biola University, La Mirada, CA
Helping nurses understand technological advances in health care and their ethical consequences.
Fertility, Infertility and Gender
June 16-18, 2010, Maynooth, Ireland (near Dublin)
Sponsored by the Linacre Centre for Healthcare Ethics, Oxford.
Choice: do we have any?
July 1-4, 2010, Adelaide, South Australia
The inaugural annual Conference of the Australasian Association of Bioethics and Health Law