The New York Times’s resident conservative,
David Brooks, is clearly intrigued by a neuroscience explanation of morality. In
a column this week he sketched the conclusions of a conference organised by The
Edge about “the new science of morality”.
The conference featured some of the leading figures in the movement, including
Roy Baumeister, Jonathan Haidt, Sam Harris, and Marc D. Hauser.
The conference organiser, John Brockman,
summarised the theme: “For the first time, we have the tools and the will to
undertake the scientific study of human nature… In 1975, [biologist E.O.]
Wilson… predicted that ethics would someday be taken out of the hands of
philosophers and incorporated into the ‘new synthesis’ of evolutionary and
biological thinking. He was right.”
Even David Brooks appeared taken aback by
the revolutionary implications. For instance, Harvard’s Marc D. Hauser is
particularly interested in an evolutionary explanation of evil. Up to now, he
claims, science has shunned the study of evil. But he has an explanation: “evil
evolved, and emerges in daily life, as an accident of our brain's engineering”.
Brooks pointed out that the speakers
“barely mentioned the yearning for transcendence and the sacred, which plays
such a major role in every human society”. This was made explicit by
neuroscientist Sam Harris, who is better known as one of the “new atheists”. He
says that developing scientific reasons for doing the right thing is an urgent
task. “The failure of science to address questions of meaning, morality, and
values has become the primary justification for religious faith.” ~ New York
Times, July 22
The infertility industry in the United
States has grown to a multi-billion dollar business whose main commodity is the
eggs of college students, claims by The Center
for Bioethics and Culture. Its documentary, Eggsploitation, which
premiers on August 9, takes a very dim view of the IVF industry. It profiles
three highly educated young women — Calla, Alexandra and Sindy — who all who
suffered dangerous health complications as a result of the egg donation
process.
Diane Allen, of Canada’s Infertility
Network, says that “This film should be seen by any woman considering
becoming—or using—an egg donor so that she can better understand the medical
risks involved.”
In 2008 doctors at Massachusetts General
Hospital were presented with a novel ethical dilemma. A 36-year-old woman had
collapsed on an international flight with a massive heart attack and slipped
into a coma. Her husband and relatives agreed that she should be taken off life
support and allowed to die. However, the order was suddenly reversed. One of
the relatives had been surfing the internet and discovered the possibility of
retrieving and freezing her eggs so that the she could have a posthumous child
with her husband’s sperm.
This was an unusual case, according to an
article in a recent issue of the NEJM. While retrieval of sperm in such
circumstances has become a familiar procedure, egg retrieval is almost unheard
of. They decided not to proceed because neither the woman (nor her husband) had
ever expressed any interest in having children, because she could not consent,
because the procedure would not benefit her, and because the protracted egg
retrieval procedure might actually kill her. Fortunately the husband agreed.
Evelyne Shuster, of the University of
Pennsylvania, told the Boston Globe that she disliked the notion of creating a
“souvenir baby”. “To reproduce is to experience the joy of giving birth, of
caring and seeing your child develop to become an adult,” She said. “This is
nonexistent when you have posthumous birth.” ~ NEJM, July 15;
Boston
Globe, July 15
Do donor-conceived children have a right to
know their origins? Vardit Ravitsky, of the University of Montreal, and Joanna
E. Scheib, research director of The Sperm Bank of California in Berkeley, say
that they do in a recent issue of Bioethics Forum.
It is not possible to get a completely
accurate picture what donor-conceived children feel. Surveys of children who
are looking for their sperm-donor fathers are affected by sample bias. On the
other hand, most parents fail to tell their children if they are
donor-conceived. This “creates an insurmountable limitation to the study sample
in any research on the life experiences of donor offspring”.
However, nearly all surveys, imperfect as
they are, indicate that most children would like more information about their
biological father. Consequently, the authors have two suggestions for the
regulation of donor gametes in the United States. First, the FDA should require
records to be kept indefinitely by donor insemination programs, sperm banks,
and fertility clinics. Second, a national register should be established to
safeguard all information related to sperm and egg donation.
Ravitsky and Scheib know that there is
little chance that the US will ban donor anonymity in the short term. But if ever
the day comes, the information will exist in a central registry. ~ Bioethics
Forum, July 20
A team of 30 doctors has announced that
they have successfully performed the world’s first full-face transplant on a
man whose face was severely damaged in a shooting accident five years ago.
The operation was completed in March in
Barcelona, at the Vall d’Hebron University Hospital, after almost 24 hours of
surgery. The 31-year-old Spanish man who underwent the surgery, known as Oscar,
reportedly thanked his doctors at a press conference for giving him a second
chance to enjoy “the little things” in life.
Before the surgery in March, Oscar was
unable to breathe, speak or eat on his own, due to his shooting accident. After
nine previous reconstructive operations, it became apparent that a complete
facial transplant might be his only option.
After two years of waiting for a suitable
donor, doctors extracted bone and tissue from a deceased man near Oscar’s own
age, placed them in preservation liquid then transplanted lips, teeth, nose,
jaw, cheekbones and tear ducts onto Oscar. His body rejected them twice, but
doctors were able to treat him successfully. The risk of rejection remains, and
he will need to take immunosuppressant drugs for the rest of his life - drugs
which will increase his risk of developing cancer and other illnesses such as
diabetes.
Oscar is now able to move his upper
eyelids, jaw, eyebrows and parts of his cheeks. He has reportedly gained
feeling in most of his face and hair has started to grow. The surgeon said the
new face does not look like the donor’s. “We were afraid of that but it doesn't
at all. The family believes that he looks quite like he did before.”
Oscar has not yet been released from
hospital and allowed home. Doctors say that he is expected to recover up to 90%
of normal movement and sensitivity over 12 to 18 months of rehabilitation. ~ Independent,
Jul 27; BBC News 23
Apr
A man from Georgia’s west Cherokee County
is seeking to end his life in a bid to grant organ transplants to those who
need them.
Gary Phebus, 62, has an incurable
neurological disease, amyotrophic lateral sclerosis, more commonly known as Lou
Gehrig’s disease. He was diagnosed in 2008. “I didn't want to believe it,"
he said. "I didn't know the ramifications except that Lou Gehrig had died
from it. I thought, 'How come me? How come I got it?' You think that happens to
other people."
Phebus began researching organ donation
online, and learned how long people wait for organ transplants. He came up with
the idea to donate his organs – right now, a procedure that would end his life.
"I have a death sentence. It is just a matter of time," he said.
"I know people are waiting on organs. If I am going to die, why not -
while my organs are still viable - go ahead and save five to 10 people."
His wife, Patti, and his four children support his plan.
"I feel it is the right thing to do.
There is a lack of organs. I don't feel like it is suicide," he said.
"I am trying to give other people a chance." Phebus also wants to
avoid years of medical bills and insurance claims. "I'm dead anyway,"
he said. "I want to live, but I don't see any way out."
However, Phebus may be thwarted by federal
law. This stipulates that an donor must pass away from brain death or cardiac
death first. More than 3,000 people in Georgia are waiting for an organ
transplant, and over 108,000 in the national waiting list. ~ Cherokee
Tribune, Jul 25
Hundreds of leftover IVF embryos from
British couples have been given away to other people without their knowledge or
explicit consent in a controversial Spanish “embryo adoption scheme”. As a
result, hundreds of British couples may have unknown biological children in
Europe or other parts of the world.
The Institut Marques clinic in Barcelona
runs an “embryo adoption scheme” in which spare embryos are given to other
women if the couple is unsure of what to do with them or if they do not reply
to the clinic’s correspondence. Anonymity rules in Spain mean that the children
will lose all links with their biological parents.
The situation has highlighted the risks of
seeking fertility treatment abroad, where different laws apply. More and more
British are going to foreign clinics where donor eggs or sperm are more readily
available.
The “embryo adoption programme” at
Barcelona’s Institut Marques clinic started in 2004, and the clinic says it is
the first of its kind. A spokeswoman for the clinic that over one-third of
British couples they treated are unsure of what to do with their embryos. This
means that since 2004, 114 out of 317 couples treated did not decide what to do
with their embryos, and they were adopted out. A further 26 couples agreed to
adoption.
Each year the clinic writes to patients
giving them the options to donate the embryos to other patients, donate them
for research, keep them for future use or destroy them. However, the letters go
mostly unanswered.
Prof Juan Alvarez, scientific director of
Institut Marques and a professor at Harvard Medical School, had an explanation
for this. “To sign this document creates a difficult situation for these
couples and in some cases may trigger emotional conflicts. They value so much
these embryos which, in fact, are brothers of their children already born, that
they cannot make a final decision and that is why they leave it to the medical
team of the centre to make that decision.”
Single women or couples can adopt the
embryos. Each embryo is matched to a woman of the same race, and implanted in
the womb and carried as normal. There is no official paperwork for adoption,
because the “adoptive” mothers give birth to the children. ~ London
Telegraph, Jul 22
“Egregious examples of deceptive
marketing”. No, not door-to-door life insurance or encyclopaedias. This was how
the US Government Accountability Office described firms selling genetic testing
kits after an undercover operation.
Federal investigators bought 10 kits each
from four of the companies, selected real donors to send in samples for
testing, and made calls to the companies posing as fictitious customers seeking
health advice. The four companies were 23andMe, Pathway Genomics, DeCode Genetics and Navigenics.
According to the GAO, the companies had
sent donors different results for the same sample and told donors that they had
a reduced risk of getting diseases that they already had. Also, the report said
that two companies suggested that personalised supplements to cure diseases
could be formulated using a customer’s DNA. One company representative told a
consumer she had a high risk for breast cancer, despite the fact that the
company did not actually test for the BRCA1 and BRCA2 breast cancer mutations.
Another customer with a pacemaker implanted 13 years ago to treat an irregular
heartbeat was told that he was at a decreased risk of developing that
condition.
Kari Stefansson, executive chairman and
president of research at Iceland-based DeCode Genetics,
has denied the charges in the report, calling them “slanderous claims about
sloppiness and misleading work.”
Stefansson said that DeCode provides
consumers with accurate genetic risk assessments that are based on validated
science. He also says that both genetic and environmental risk factors must be
taken into account for certain diseases. “The fact that someone develops a
heart attack,” he said, “does not mean he has a high genetic risk for heart
attack.”
Congress and the Food and Drug
Administration are currently investigating the genetic testing market for. Some
officials have expressed concerns over the quality of the tests and the degree
of variance between analyses by different companies. Also, many are concerned
that people will make medical decisions based on the results without consulting
the appropriate medical professionals. ~ New York
Times, Jul 22
A national review of bioethics laws in
France still has not reached a resolution. The current law dates back to 2004 and
the government conducted an extensive
review in 2009. The President, Nicolas Sarkozy, did not want the
debate to be highjacked by “experts” so hundreds of meeting were held
throughout the country – a kind of "Etats généraux de la bioéthique"
after the Estates-General which inaugurated the French Revolution.
At the same time, a committee of parliamentary
deputies conducted more than a hundred hearings with the experts -- lawyers,
doctors, scientists, psychologists, and the religious leaders.
* the primacy of ethics over scientific and
economic criteria
* The “interests of the unborn child” must
be taken into account in making decisions about reproductive technology.
* bolstering research on genetic diseases,
especially trisomy 21 (Down syndrome).
* better integration of disabled persons.
* preserving the ban on surrogate
motherhood
* an extension of pre-implantation
diagnosis to trisomy 21
* authorization of human embryonic stem
cell research
It is likely that France will continue to
be more restrictive than other countries in Europe. The raporteur for the
report to the National Assembly, Jean Leonetti, told the French
magazine Le Point earlier this year, “So what if surrogacy is
permitted by our neighbours? If the law is determined by what everybody else
does, what's the good of the law? How far are we prepared to manipulate
bioethics to respond to our every whim? It's odd that we apply the
precautionary principle to the environment and not to human beings.” ~ HT, Jean
Matos
German scientists and doctors are still
coming to grips with the grim story of how their colleagues collaborated with
the Nazis. A recent issue of the journal Science sketches the link between German
anatomists and the regime. Before Hitler came to power, about 20 civilians were
executed each year in Germany and their bodies were made available to
anatomists. Between 1933 and 1945, however, at least 16,000 civilians were
executed – apart the death camps. By 1942, all the bodies of prisoners executed
for high treason were being turned over to anatomists.
With the emergence of more historical data,
Germany’s Anatomical Society plans to hold its first meeting on “Anatomy in the
Third Reich” on September 29. “We hope that this will contribute to a global
debate on ethical standards for the use of human cadavers in research and
teaching,” Andreas Winkelmann, an anatomist at Charité Medical University in
Berlin, told Science. Indeed, it is still an issue, as there have many
allegations that the plastinated bodies in some travelling exhibitions come
from executed prisoners.
Historians have uncovered abundant
information about how callous the anatomists of the Third Reich became. In
Vienna, for instance, a special streetcar ran between the place of execution
and the medical school morgue. If the morgue was full, executions were delayed.
At least 1,337 bodies were delivered in this way.
In another distressing example, the
director of the Berlin Institute of Anatomy from 1935 to 1952, Hermann Sieve, dissected
the bodies of 200 female prisoners to understand how their reproductive system
was affected by the stress of learning the date of their execution. “The
picture is one of a very gradual slippage in moral values among anatomists,”
says Christoph Redies, a professor of anatomy at the Jena University Hospital.
~ Science, July
16
Consequences of the Bio-Medical Revolution
May 1, 2010, Biola University, La Mirada, CA
Helping nurses understand technological advances in health care and their ethical consequences.
Fertility, Infertility and Gender
June 16-18, 2010, Maynooth, Ireland (near Dublin)
Sponsored by the Linacre Centre for Healthcare Ethics, Oxford.
Choice: do we have any?
July 1-4, 2010, Adelaide, South Australia
The inaugural annual Conference of the Australasian Association of Bioethics and Health Law